Call from School

Today, around lunch time I received a call from my daughter's school. Both Kylie's first and second block teachers had called the nurse to say Kylie was experiencing the "Eye fluttering" and did not look well. Finally, Kylie's math teacher walked her down to the nurse because her symptoms became increasingly more severe. I appreciate her math teacher so much for getting her to the nurse. When I made it to the school Kylie was laying down and very much out of it. I waited a bit and asked her if she wanted to go home and she said yes. Kylie hates to go home because she loves school.


Kylie has a nasal spray that I can give her to stop the "Eye Fluttering" and pre-seizure symptoms. The medication is called Nasal  Midazolam. The drug is actually used to sedate people before surgeries.

The only FDA-approved treatment for acute repetitive seizures must be given rectally (very embarrassing for a middle schooler), but nasal midazolam has been shown to be at least as effective but is still in FDA trials. Since the medication is not yet approved for seizure treatment Kylie can not be given this medication at school. As I write this blog my daughter is still a sleep from the time I administered the medication.

Sleep seems to be the only thing that puts her body back on track. So as I write this blog, I sit here and watch my Sleeping Beauty get the rest she needs.